Brittle Bone Society
Brittle Bone Society
The Brittle Bone Society (pronunciation: Brit-tle Bone So-ci-ety) is a UK-based organization that provides support for individuals and families affected by Osteogenesis Imperfecta (OI). The society was established in 1968 and has been instrumental in raising awareness about the condition, providing support services, and funding research into OI.
Etymology
The term "Brittle Bone Society" is derived from the nature of the condition it supports. Osteogenesis Imperfecta is commonly referred to as "brittle bone disease" due to the fragility of the bones caused by the condition. The word "society" signifies a community or organization.
History
The Brittle Bone Society was founded in 1968 by Margaret Grant and a group of people affected by OI. The society was established to provide a support network for individuals and families dealing with the challenges of living with OI. Over the years, the society has grown and expanded its services, which now include financial assistance, advice, and information, as well as funding for research into OI.
Services
The Brittle Bone Society provides a range of services to support individuals and families affected by OI. These include:
- Support Services: The society offers emotional support, advice, and information to individuals and families dealing with OI. This includes a telephone helpline, online resources, and support groups.
- Financial Assistance: The society provides financial assistance to help with the costs associated with living with OI. This can include funding for specialist equipment, home adaptations, and travel costs for hospital appointments.
- Research Funding: The Brittle Bone Society funds research into OI, with the aim of improving understanding of the condition and developing new treatments.
Related Terms
- Osteogenesis Imperfecta: A genetic disorder characterized by fragile bones that break easily. It is also known as brittle bone disease.
- Margaret Grant: The founder of the Brittle Bone Society.
- Support Services: Services provided by organizations like the Brittle Bone Society to help individuals and families cope with health conditions.
- Financial Assistance: Monetary aid provided by organizations to help individuals and families cope with the costs associated with health conditions.
- Research Funding: Financial support provided by organizations for research into health conditions.
External links
- Medical encyclopedia article on Brittle Bone Society
- Wikipedia's article - Brittle Bone Society
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