The Myelin Project
The Myelin Project
The Myelin Project is a non-profit organization dedicated to accelerating research on myelin repair and to improving the quality of life for those suffering from demyelinating diseases. The organization was founded in 1989 by Augusto Odone and his wife, Michaela Odone, after their son, Lorenzo Odone, was diagnosed with Adrenoleukodystrophy (ALD), a rare and fatal demyelinating disease.
Pronunciation
Myelin Project: /maɪəlɪn prɒdʒɛkt/
Etymology
The term "Myelin Project" is derived from the word "myelin", a fatty substance that surrounds and insulates nerve fibers, and "project", indicating an organized effort or task. The name reflects the organization's focus on research and therapies related to myelin.
Related Terms
- Adrenoleukodystrophy (ALD): A rare, genetic disorder leading to progressive brain damage, adrenal gland failure, and death.
- Myelin: A fatty substance that surrounds and insulates nerve fibers, allowing for efficient transmission of electrical signals.
- Demyelinating Diseases: Conditions that damage myelin, disrupting communication between the brain and the rest of the body.
- Augusto Odone: A former World Bank economist who, along with his wife, founded the Myelin Project after their son was diagnosed with ALD.
- Michaela Odone: Co-founder of the Myelin Project and mother of Lorenzo Odone.
- Lorenzo Odone: Son of Augusto and Michaela Odone, diagnosed with ALD, and the inspiration for the Myelin Project.
External links
- Medical encyclopedia article on The Myelin Project
- Wikipedia's article - The Myelin Project
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